July 3rd, 2011 13:43 EST
GIVE! Actively Helping Children and Families Affected by AHC Needs YOUR help!
Hello readers! Two weeks ago I brought to your attention the most incredible organization on the map! And, with the response, I know you listened! I have not only been given the honor of finding out about such amazingly wonderful causes as the AHCF through this work, but I`ve also been given the honor of meeting some of the most amazing readers with `big hearts.` Which is why I want to take this time with all of you `big-hearted` people out there to talk about GIVING!
To briefly recap, AHCF - (AHCKids.org) - is dedicated to helping children with AHC! There is a team of absolutely incredible individuals across the nation who work together to achieve a cure for AHC, and WE need to jump on board and help them all we can!
AHC stands for Alternating Hemiplegia of Childhood, which is a rare neurological disorder in which children experience bouts of temporary paralysis affecting one or more parts of their body. These episodes can last for minutes, hours even days, and are sometimes very painful. AHC also severely affects a child`s ability to learn; it`s as if the brain `short circuits.` And many AHC sufferers also have epilepsy.
The AHCF is the remarkable organization that speaks for these children and their families. President, Jeff Wuchich, and the incredible Board and volunteers through AHCKids.org, keeps everyone informed about the great things that have been happening in 2011 through the AHCF newsletter. And one very important piece of information is the fact that the AHCF is holding a number of fundraising events as they continue to add to their Board and volunteer roster.
Enter YOUR `big hearts.` I want to first tell you where every single penny of your donation goes. AHCF`s top priorities for your extremely `big-hearted` gifts, are the funding of clinical trials. These clinical trials test drug efficacy to help elevate and remedy some of the symptoms of AHC.
YOUR `big heart` supports the AHCF`s Annual Family Gathering, which allows families affected by AHC the chance to actually speak - on a one-to-one basis - with top researchers in the fields of genetics, psychology, and cognitive development. This amazing time every year is a huge help to the parents and patients of AHC, and it also gives them a way to exchange ideas, information, and assistance with each other.
YOUR `big heart` goes to creating an International Database of AHC Patients. This long-range goal involves as many participants as possible, and will help increase the chances of finding a cure for AHC.
Jeff Wuchich has recently announced to one and all that the AHCF has received the first half of the $250K grant from Pepsi Refresh, which AHCF won. This money has been sent on to the researchers in Utah, and they are in the process of getting the samples together to send over to the genome sequencing company. This incredible step is just the beginning!
Right NOW there is a huge opportunity for that `big heart` of yours to help the AHCF even more! The Vivint Gives Back Contest can provide much-needed grant money for the AHCF! What began on June 14th, 2011 is STILL going strong! Millions have come out to vote, but MORE is needed! Every single day YOU can vote in the Vivint Gives Back Contest to enable the AHCF to win $250,000.00 to further research into AHC, develop treatments and trial medications, teach the public and professionals about AHC, and ultimately find a cure!
And voting is EASY! I want to direct each and every one of YOUR `big hearts` to the very site that will allow YOU to help the AHCF in their work. Heading to, http://www.vivint.com/givesbackproject/charity/57 allows YOU to vote for the AHCF to win a $250,000.00 grant to continue the work that they began by winning the `Pepsi Grant.` Once a day YOU can visit this site and vote to help the Alternating Hemiplegia of Childhood Foundation receive a part of the $1.25 million dollars that Vivint is awarding to local charities. The Vivint Gives Back Project is a program run by Vivint, Inc, which allows Facebook users to help Vivint support charities that are doing outstanding work in neighborhoods and communities across the United States. It is a great opportunity for these local charities to be recognized by their supporters! Help AHCF! WE have a little over eight weeks left to get that grant money for AHCF, so start voting today!
AND, on September 18, 2011, YOU can participate in the 6th annual Chicago, Illinois, Walk With Us. This AHCF walk kicks off at 9:30, when registration begins, and walkers can join with flexible start times up to 12:30 pm.
The `Walk` is held in honor of Kiley Andrasco (10), Emma Platt (9), and all families affected by AHC. The Chicago Walk started in 2006 when Emma`s Godparents responded to a call for action by the AHC Foundation. Each year, various AHC families from the Midwest join together to raise awareness for the disorder and donate funds in support of the foundation. The support of family and friends makes for an incredibly humbling and inspirational day. The length of the walk is one to three miles, and not only do participants get to help a worthy cause and enjoy a beautiful walk around Lake Zurich, but there will also be other activities. `Skates,` the mascot for the Chicago Wolves hockey team, will appear! Free frozen custard from Culver`s of Lake Zurich; a 50/50 Raffle with additional tricked-out raffle baskets; wooden playground equipment; sport games; carnival games; face painting, and more! Not only will your `big heart` be helping this incredible organization, but you will also have one of the most fun and entertaining days you could possibly imagine!
There is no registration fee and the stunning location is Paulus Park, 200 S Rand Road, Lake Zurich, IL. (Contact Diane Evans, chair firstname.lastname@example.org and Gene Andrasco email@example.com for more information)!
At AHCKids.org YOU can find out about so many things that YOU can do to help find a cure for AHC! This outstanding website covers everything from the latest news, information, and medical updates, to family support that offers everything from funding research projects to eliciting the help of a medical advisory board that consists of physicians who have first-hand experience with this disorder.
Readers, you need to know about a young girl by the name of Lisa Marie Hodes. This is a ten year-old girl who has the same life experiences that most of her peers have - learning to text message, going to a bowling alley with her family, sitting in a classroom - but all of these "normal` experiences are not easy for Lisa because she suffers from alternating hemiplegia of childhood (AHC). Lisa`s amazing story can be found on ACHKids.org, and each and every one of you needs to read it! (http://ahckids.org/ahcf-in-the-news/yorktown-girl-battles-with-rare-childhood-illness/)
THIS is who your `big heart` is here for!
THIS is who will be in your mind when you go to http://www.vivint.com/givesbackproject/charity/57 every single day for the next eight weeks to vote for the AHCF at the Vivint Gives Back Project. YOUR `click` will help them to win the $250,000 that will help find a cure!
GIVE! GIVE! GIVE! Whether it be your time, talent, money, or a simple `click` every morning on your computer at the Vivint Gives Back Project, YOUR `big heart` can GIVE in a multitude of ways to help these children and their families!
Just think! When all of our `big hearts` come together as a team, there may soon come a day when Lisa Marie Hodes, and others, won`t even need the AHCF, because the cure has been found!
Until Next Time Everybody!
For the Vivint Gives Back Program, go to YouTube and learn about AHCF in action:
And Vote here at http://bit.ly/frR3GZ
You can also VOTE TODAY and EVERY DAY for the AHCF to receive that all-important funding here:
Become a follower of AHCF`s President - Jeff Wuchich at: https://twitter.com/jwuchich
Go to Twitter daily and see how YOU can help!
And for additional information or questions about the AHCF go to:
write to: firstname.lastname@example.org