May 13th, 2010 10:25 EST
Fibromyalgia Advocates Rallying at the State Capitol
Fibromyalgia Association of Michigan commemorates National Fibromyalgia Awareness Day with the 1st advocacy day for fibromyalgia in Michigan.
LANSING, MI " (10 May 2010)-- People with fibromyalgia (FM) and their friends and family members are going to the Capitol Building in Lansing for the first Michigan Fibromyalgia Advocacy Day on Wednesday, May 26, 2010. The goals of advocacy day are to unite and educate the Michigan FM community and inform legislators about the impact of fibromyalgia in Michigan and resources that are available to them and their constituents.
People are struggling alone with this illness, " said Sharon Waldrop, FAM director. There are great treatments, therapies and coping resources for FM, we just need to get the word out. We believe this event will make a difference for families living with FM in Michigan. "
The event is hosted by the Fibromyalgia Association of Michigan (FAM) with the support of Michigan House Representative Fred Miller. FAM is a volunteer-led non-profit organization committed to improving the quality of life for people affected by fibromyalgia in Michigan by providing support, education and awareness. All are welcome. Registration is required. For information and to register visit MiFibromyalgia.org or call 248-885-HOPE.
Schedule of Events
10 AM " FM Advocacy Seminar
Speakers: Sharon Waldrop, FAM Director; Michigan House Representative Fred Miller
11 AM " Press Conference " Please Join Us
Presentation of House Resolution recognizing FM Awareness Day - Michigan House Representative Fred Miller
FM update " Dr. Daniel Clauw, MD, Director of the Chronic Pain and Fatigue Research Center at the University of Michigan; Sharon Waldrop, FAM Director
11:30 AM " 1:00 PM " Legislator Lunch & Learn "
Michigan legislators will learn about FM from their constituents over lunch.
1:30 PM " Understanding & Managing FM - Dr. Daniel Clauw, MD
Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. FM is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities. FM affects an estimated 10 million Americans.
Fibromyalgia Association of Michigan
Fibromyalgia Support Group at St. John Macomb Hospital
PO Box 1876
Royal Oak, MI 48068-1876
Ph: (248) 885-4673
Join us in Lansing on May 26 for Michigan Fibromyalgia Advocacy Day. Make fibromyalgia visible Michigan!